If you look at Marietta's report card you would never know that she accomplished about a third of her high school time while having a brain injury. Her marks remained superb throughout all her years, but the effort and energy and pain it took to accomplish those marks changed drastically. Brain injuries are hard to understand, but one thing we are reminded of from her experience is that a brain injury does not mean a person has suddenly become a dunce and cannot think, it does mean that at times it takes them longer then normal to think or they simply cannot process what is being said, but when the brain kicks in it is quite capable of doing amazing things.
Marietta could have chosen to just go with the flow of her injured brain and let her school work reflect the fact that many days she could not process what was going on, but instead she chose to make sure that her work and her marks reflected the ability that she is capable of. Last year was a hard year for Marietta as she returned to school and slowly worked her brain up to being able to do an afternoon of courses; this year proved to be an even harder year, not necessarily because of the school work, but because of the disappointments she had to work through. She had expected after a decent summer that she would slowly be able to work her brain up to being able to take a regular course load, but this was not to be, and this fact was hard to take. Each semester this year Marietta took 2.5 courses (Bible being a "half-course"). The plan had been to add another course in, but as the school year wore on she was still struggling to manage the courses she was taking and had to come to terms with the fact that her brain simply could not do more. The dream of becoming a teacher slowly closed for the time being, talk of dropping out of school happened at various intervals, tears of frustration were shed from time to time, many days were missed due to the brains inability or simply too much pain, but in the end she made it and we couldn't be more proud of her.
It has almost been two and a half years since Marietta's accident and sometimes we feel like she is not making progress, but at those times we have to take a step back and look at the big picture. Instead of looking back days or weeks, we need to look back months or even years.
Just over a year ago Marietta could not make it through a full "normal" day without rest. She slept in and took a long time to get out of bed, it was a slow process for her to wake up and get through breakfast and get ready for school. She attended 2.5 hours of school, driven by car because the bus caused motion sickness and had way too much noise, and came home exhausted and needing to rest. Life outside of school was pretty much non-existent as school drained all her energy.
This is the biggest aspect of change we have seen. She gets up each day with the others, goes to school at normal time, attends her classes and when not in class works on homework at school. At the beginning of the year when we lived in Taber she took the bus to and from school, now that we are in Coaldale she walks home (about 20 minute walk) when she is done at school. This helps to keep her on schedule with her daily exercise that the Concussion Clinic wants to see. Once home she does usually have some "down" time, which for her means texting/chatting with friends or doing some non-homework things. She works on homework in the evenings again and tries hard to get to bed on time (around 10 pm) as she needs a good amount of sleep to get through her days.
As far as symptoms goes, unfortunately we haven't seen as much change as we would like in this area. Symptoms continue to be up and down with no real rhyme or reason. They are not the same all the time but can vary from head nausea to head pain, vision disturbances, noise sensitivity and sometimes still light sensitivity (she has special tinted glasses that seem to help a lot with this issue, which she would really like to wean out of, but just hasn't been able to so far). During these times she will be exhausted and have no energy, these symptoms will also effect her ability to process what is going on around her, her balance and sometime her ability to speak. Some times she can simply feel that the brain is not really processing as it should and knows that she needs to keep it low key and stay home, other times she can start off doing okay and suddenly tumble into pain. When things are good she enjoys it and does what she can because there is no storing energy for another day. Just use what you got when you have it.
These challenges mean that Marietta very seldom drives and if she does it's only a very short distance as she has to be sure that nothing will change from the time she leaves until she comes home that would change her ability to return home. A couple months ago Marietta's brain entrainment equipment broke and she decided to try without it. This means she no longer has to be woken up at 5:45 am to turn on the equipment (she could go back to sleep while it ran). She would also run it when she went to bed to help her get to sleep - the first few days without it were harder for her to sleep, but with time she has adjusted and seems to be doing okay without the equipment.
In January Marietta started at the Concussion Clinic at the University of Lethbridge. Through their assessments they have determined that Marietta's brain can work and she can have energy at times, but if you try to get the brain to work while doing something that takes energy (walking on a treadmill) then it isn't able to function very well anymore. We have always known that she is struggling with energy ... is it the brain that is draining the energy or is use of energy draining the brain? The clinic has her working towards increasing her ability to do these separately and then they want her to work on putting the two together. Previously the clinic had her doing physio therapy, which ended up causing a ton of symptoms and a lot of missed school. So since Marietta has already been struggling a lot, especially the past couple month, just to get to school we decided not to throw any further loops into the situation and have put the clinic on hold until school is done.
With school done Marietta has decided to take some time off to simply work on letting her brain recuperate. Holding a job at this time would be a challenge as she is unpredictable on when she is well enough to work and returning to school in the fall has absolutely no appeal to her since it is so hard on her brain. She simply wants to give her head some time and see where it leads her. This time will likely also involve trying a few different therapy options which we just didn't want to attempt while she was in school as it seems all the previous options we tried didn't help or caused more symptoms
And a few pictures from her graduations. The class had an official photoshoot (in the rain), but those photos won't be ready for a bit, so here's a few snapshots that were taken throughout the day.
Their grad text:
"Fear God and keep his commandments, for this is the whole duty of man" Ecc 12:13b





























