Week #4 Completed

August is around the corner.  Another week has gone by.  As is usual during the summer, time is flying by. 

We have reached the end of Week 4 at the clinic.  Today was Rebecca’s last day of intense full day therapy and next week her schedule will adjust to more home therapy and then going to the clinic twice a day for the hyperbaric treatment.  Unfortunately the other kids aren’t timed to be done this week as well, so next week Marietta and Matthew are still on their full schedule – which is usually from about 9am – 1:30 pm.  We haven’t gotten next week’s schedule yet, so we don’t know how much back and forth driving or hanging around the clinic the new schedule will create. 

This past week we saw a bit more energy in Rebecca for a few days, although yesterday was back downhill with exhaustion and aches.  Instead of heading straight for her room and her bed when arriving home she would play the piano or go on the computer while I made supper and on Wednesday evening she even went out with us to watch a baseball game after supper.  The nice thing is that when she has more energy she often can be heard singing to herself as she does stuff and she gets more witty and humorous which is quite enjoyable as she will actually interact more.  Whether it was a temporary “burst” of energy or will come more often only time will tell.

Matthew is harder to tell if we are making progress.  Overall he is having less dizziness and headaches, but they do still come and we’re not always sure why but he finds that the brain entrainment he is doing often sets it off.  They have been working to adjust the training so that hopefully this won’t continue to happen.  Overall he has a good amount of energy and does not need as much sleep as he used to, although he almost always falls asleep while doing PEMF, so I sometimes wonder if I’m getting too relaxed on his bedtime. We still see some rollercoasters in his mental state, where he goes through stages of negativity and a bit more behavioural issues and then comes around again and we see the relaxed happy-g0-lucky Matthew that we are used to.  The reality is he is also at an age where one can see these things regardless of illness … previously we could often see it in relation to exposure to enclosed areas that would have higher mold concentration, but at this time that isn’t always so clear anymore and thankfully the aren't as severe as we were seeing before.

Marietta has had less therapy days then the other two, so we’re hoping that’s why we aren’t seeing any positive changes for her yet.  Overall she continues to be relatively the same as before treatment with regular ups and downs, although I would say we’ve probably had a bit more on the down side lately. This is possibly from the longer days as her brain and body had previously only fully functioned for around 5 hours during the school year (and the rest was more low key relaxing and recuperating) whereas now it’s 7:30-5ish each day. It’s not hard core during this time but it’s a step up from before. Since there has never been any pattern in her ups and downs it’s hard to do any evaluating of where she is at and we just pray that as we slowly chug along with this there will come some positive changes. 

Excuse to cheat on our diet again ... Matthew turned 11 on Wednesday and so the clinic provided cake again

Matthew had a few friends down for his birthday and after supper we went to watch the local baseball game

Rebecca had bit more energy that day and so she came along to watch.  She still gets quite a bit of pain in her back and sitting on bleachers is rather uncomfortable, so we took along the wheel chair.  We haven't really gotten out a huge amount, but we have the wheelchair for if we are doing a fair amount of walking so Rebecca can conserve her energy and come along, otherwise she tends to rather stay home and not tire herself out.

Matthew playing baseball with his buddies on his birthday